Today, I published a social media post sponsored by Otsuka Pharmaceuticals. I realize that this upsets some people. Some people have this idea that “big pharma” is the enemy. I know that now that I am publicly working with them, I am the enemy, too. I understand this perspective. In fact, once upon a time, I swore I would never work with a pharmaceutical company. But I haven’t taken on this collaboration with a pharmaceutical company lightly. There are many legitimate reasons a patient might collaborate with a pharmaceutical company.
This Patient-Pharmaceutical Collaboration Is About World Mental Health Day
Today’s social media post is about World Mental Health Day. It includes tips like “reach out” and “start conversations.” It does not talk about an Otsuka product in any way. In fact, let me tell you a little secret: I couldn’t talk about an Otsuka product even if I wanted it. The laws around what pharmaceutical companies can and can’t say are wickedly strict and a layperson like me could never be seen as talking about their product in a sponsored way. Going through the process of getting this social media post approved by Otsuka and their lawyers has made it very clear to me that there are many hoops for them to jump through, and jump through, they do.
So, this collaboration with Otsuka isn’t an ongoing or global sponsorship but, rather, present in very specific activities only. (You’ll see anything involving Otsuka clearly marked as such.)
Why Have a Patient-Pharmaceutical Company Collaboration?
There are many reasons why a patient might want to collaborate with a pharmaceutical company. For example, pharmaceutical companies keep me alive. It’s absolutely in my best interest to ensure they continue to do so for me and others. Also, pharmaceutical companies push innovation and research forward. Patients desperately need this. It’s absolutely in our best interest to make sure it keeps happening, particularly in the area of mental illness (in our case). Also, Otsuka Pharmaceuticals is going to be researching, making, and selling drugs to patients no matter what. It absolutely is in our best interest to ensure that the patient voice has a seat at the table when the company gathers the data that drives important decisions.
But finally, and this is the one I know you’ve been waiting for, pharmaceutical companies have the money. That’s it. Money. If the fuzzy teddy bear lobby had lots of money and wanted to give it to me, I would work with them, and everyone would be happy. But that’s not the way capitalism works. In this case, pharmaceutical companies have all the money. I need money. A natural relationship exists.
Believe me, it is very hard to make a living as a mental health advocate, not to mention a disabled person. It is very hard to make a living as a writer. It is very hard to make a living as a speaker. Yes, speaking, writing, editing, consulting, and other things I have done yield income. But that income is irregular and scant. But you know what isn’t irregular? Mortgage payments. The bank really doesn’t care if I’m having a bad month. They just want their money, and they certainly don’t care where it comes from.
I wish I had the luxury of a regular full-time job, but I don’t. My disability doesn’t allow for it.
I need money. Otsuka Pharmaceuticals is willing to give me some. I will take it.
The Benefits of Big Pharma-Mental Health Advocacy Collaborations
I know some people don’t want to hear this, but there are benefits to patients when mental health advocates carefully and thoughtfully collaborate with “big pharma.”
In addition to just supporting mental health advocacy and allowing people like me to continue our work, patient-pharma collaborations can also:
- Amplify patient voices
- Raise awareness further than when it’s done by a single person
- Create educational materials for patients
‘But Big Pharma Is Evil’
I can understand this perspective. En masse, over time, pharmaceutical companies have done awful things. You only have to look at the Sackler family to see just how evil pharma companies can be. That said, not all companies are the same. Some companies are law-abiding and really just research and offer treatments to sick people who need them. Have a problem with the laws? I understand. But that isn’t a problem with big pharma, that’s a problem with your government.
I have thought that “big pharma” was evil many times. But when it comes down to it, I wouldn’t be alive without them, and neither would millions of other people. There might be issues with how some companies do certain things, but let’s not forget the immeasurable life-saving gifts they also contribute.
What About Otsuka Pharmaceuticals?
I can’t claim to be an expert on Otsuka Pharmaceuticals. What I know about them comes from my personal interactions. And in those, I can tell you they have been incredibly respectful and receptive to the patient and advocate perspective. I consider myself lucky to get to work with them.
Anti-Patient-Pharmaceutical Collaboration — The Hate I’m About to Get
Yup, I’m expecting blowback for deciding to publically work with a pharmaceutical company. I have taken people’s temperature on this subject in the past, and people are not fans of this type of collaboration. I get it. They think I’m now going to be biased. They think they can no longer trust me. They think this is going to change my content.
I appreciate your concerns. I really do.
(But I would also appreciate it if you wouldn’t be too nasty about it. Feel free to leave your thoughts below, but if they’re abusive, they will be moderated.)
What I’m Doing to Ensure I Remain Impartial Despite Pharma Money
My relationship with Otsuka Pharmaceuticals has not and will not influence my editorial choices, period.
That being said, I understand that no matter how impartial I tell you I am, some people aren’t going to believe me. So, here’s the deal:
- My relationship with Otsuka Pharmaceuticals is clearly spelled out in my conflicts of interest section (linked at the bottom of every page).
- I will not talk about Otsuka products here at all. I may talk about categories in which they offer products in general, but I won’t talk about any offerings by Otsuka.
- Any time Otsuka sponsors anything, it will be made very clear. (Believe it or not, there are very strict laws around this, and pharmaceutical companies are very careful about following them. They have a lot of lawyers. So does the government.)
Mental Health Advocacy Can Co-Exist with Pharmaceutical Companies’ Sponsorship
Look, I’m not the first mental health advocate who has worked with a pharmaceutical company. In fact, major mental health organizations that are dedicated to helping patients, like the National Alliance on Mental Illness (NAMI) and Mental Health America (MHA), both take pharmaceutical money — lots of it — as do pretty much all the rest of them. I understand that in a perfect world that might not be the case, but this work just isn’t perfect.
If You’re Still Concerned About This Patient-Pharmaceutical Company Relationship
If you still have concerns, I understand. Please leave a comment below or contact me directly, and I’ll do my best to address them.
Photo by jarmoluk from Freerange Stock.
Hi!
Congratulations.
Thank you very much for your wonderful sharing.
Greetings from Thailand!
I’m new here and grateful for your sharing.
Glad you partner with Otsuka. I am their loyal customer for almost twenty years. I understand your situation. I once worked in NGO sponsored by Big Pharma too. They are helpful. We supported one another well for about 15 years.
Hello! I remember commenting here a few years back, during the time I had a really bad depressive episode. I don’t quite remember what I said and what you responded with, but I do remember being surprised I got noticed. I felt less alone.
I’m happy to read this update of yours. All the best!
Hi Catherine,
Thanks for stopping by again. :)
I took a look at your previous comments (there are two) and they were thoughtful. I try to get back to those sorts of comments when I can (but I’m not perfect). I’m honored that my response(s) were helpful for you. That is always my hope.
And one thing I can tell you for sure is that you aren’t alone. No matter what the mood, what the symptom, or what the side effect, there are people out here standing with you.
I’m happy to write this update :)
All the best to you as well.
— Natasha Tracy
Natasha, I am very happy for you and I am you will do a great job representing the voice of those with mental illnesses. I don’t believe you sold out. Pharmaceutical companies need to hear our side of the story and I know you will make sure they do. Congratulations and I wish you much success.
Hi Jeanette,
Thank you! Yes, I will do my best to represent our voice.
— Natasha Tracy
Brava! Well done on finding some sponsorship. I have no qualms at all in reading your very informed words and wish you well under this sponsorship banner.
Hi Jane,
Thank you! Your support is very much appreciated.
— Natasha Tracy
Well said Natasha! They are lucky to have you. Best wishes for much success. The world will be a better place with advocates like you working with industry.
Hi Martha,
Thank you for your support. I’m really honored by your words.
— Natasha Tracy
Natasha, it’s been some twenty or more years since I came across your original writings on the internet and I’m very glad you’re still with us and doing your best to survive and overcome the very difficult challenges of your mental health issues. I’m also very happy to read that you’ve secured employment to help pay your bills. What is important is to survive with the hope you and all your followers will find some treatment option to overcome these illnesses. In my opinion you did not “sell out”; you’re just surviving as best you can. Some will understand while others may not. Stick with the honesty in what you have to say as I believe you have these many years, and those who sense that honesty will continue on with you.
When last we communicated, many years ago, you may remember me and my wife Joyce from my vnsdepression website. My spouse passed away in 2015 and I have since remarried. I was a caregiver, lay-depression expert to my spouse, support group facilitator, President and board member of a local chapter of DBSA in South Florida as well as a mental health advocate/activist of more than fifty years. I have since moved on in the twilight of my life but from time to time read your missives as well as communicate with other challenged individuals who have befriended me through the years.
I wish you the very best in all that you undertake and most importantly I wish you the wellness you seek.
Fondly,
Herb
Hi Herbert,
Yes, it’s been a while! I’m honored you would check in after all this times. Thank you for being so supportive.
I’m glad you have found happiness since your spouse passed on. I know that can be very hard for people.
I wish you the very best as well.
— Natasha Tracy
I recently tried to take vreylar after rexulti and abilify did nothing (like almost all meds with me). I saw lots of videos before by Americans and they were being charged something like $1600 bucks a month to take it when it was protected for 5 years or maybe longer in the US. I got my prescription for the brand name as its only been in Canada for less than 2 years I believe. I filled my 1 month script and without insurance (just FYI as Im a vet and get my psych meds refunded to me) was something like $80. Thats for brand name as its not yet generic in Canada. I know generic is cheaper than brand name (when its not protected) but I have no idea how Americans afford meds if you do not have insurance. I go to the ER several times a year for help and see it posted by the ER intake desk that Americans are charged approx $1000 Can to be seen by a nurse and another $1000 to see a Dr and that does not include any diagnostic tests or meds. So $2000 to see an ER Dr. Thats about $1500US. Wow and can you imagine what it would be if an MRI is needed or CT etc.
Hi Rob,
Yes, drug prices are insane in the US. I’m in Canada, so, as you said, it’s different. I believe the US government absolutely needs to get a handle on that. I actually think it’s pretty much criminal that they haven’t already. But then again, I’m also very pro-universal healthcare.
— Natasha Tracy
Congratulations! It will help them to hear from such a knowlegable advocate, who also has a mental illness. New treatments are desperately needed. They have saved my life too. Plus, a close family member also works with them and the FDA, The work is absolutely neccessary. Yes, they are businesses, & can fall prey to pitfalls businesses can fall into, but they are needed. Your voice is needed!
Hi Laura,
Wow, thank you! I was not expecting the outpouring of love. I really appreciate it. I believe not only is my voice needed, but I believe they actually listen to it.
— Natasha Tracy