My daily life is based around the single concept of not making my bipolar disorder worse. It seems I’ve gotten past the point where I can do anything to get better, so all I can do is not make my bipolar disorder worse. This is an incredibly depressing realization. This realization posits that I will be in pain every day and the only thing I can do is not make that pain worse. I will continue to be bludgeoned every day, all I can do is make the club smaller.
I don’t mean to be depressing, I don’t, but this is the truth for me. I truly can’t do anything to make myself better on a daily basis. I keep trying with depression treatment and it works, to a degree, but day-to-day, there is nothing I can do to make the bipolar better. I’m just beyond that point. Any coping skill, any technique, any therapy, any anything just doesn’t work.
What Can You Do to Help Bipolar Pain?
My friend is a smarty and if I tell him I feel really depressed and even suicidal, he’ll always say, “What can you do to help? What’s the plan?”
His point is I need an action plan when I feel that bad so I actually get through it and don’t cave to it. He tries to engage my logical self so that I can point out actions that will make me not die.
This is smart on his part. It acknowledges the suffering and tries to step beside it. It’s slightly manipulative (but for the right reasons), and I know what he’s doing when it does it, but he does it anyway.
But the thing that he doesn’t really firmly get in his soul is that there is nothing I can do to make this better. He, like everyone else, has experiences that can be changed via action or attitude. I am not in that space. The bipolar disorder has me. It’s strangling me. It does it every day. I can do nothing to pry its hands from my neck. All I can do is not make the pain worse.
Not Making My Bipolar Pain Worse
And that’s something, I suppose. I mean, that’s a thing I can do and that’s a thing I must do in order not to die. I have to not make bipolar pain worse because I can’t handle any more “worse.”
And somehow, in spite of this realization about my life revolving around not making a chronic, possibly-lethal illness worse, I have to keep going. I know the pain is going to be there, omnipresent in my life. Even realizing and acknowledging this is not a reason to die. I know this. I’m telling you this. Daily pain does not equal death, it just equals daily pain.
And, yes, I know it’s exhausting and, yes, I’m very tired. But I also know that the next medication change may lead to a new reality for me. Maybe the bipolar symptoms will lift enough such that something actually will make me feel better and it won’t just be a matter of not making my bipolar worse. Treatment has the power to do that sort of thing. That’s why it exists.
But until then I will live with the excruciating knowledge that nothing makes me feel better. Nothing. The only thing I am actually capable of is making the pain of bipolar disorder worse. So the only actions I can take is those that avoid that.
Banner image by Libertarian Girl.
Dear Natasha, There isn’t a comma that you wrote that I don’t feel or agree with. It’s uncanny how you can put my mind and feelings down into simple words. If there were a bipolar Oscar- you’d deserve it. A Pulitzer prize for nailing my level of crazy to the core. I love you and adore you for giving it a concise description. It soothes me. It gives me hope.
I fight every moment, every day. I’m dependent/addicted to tranqs and mood drugs to survive, to slow down my head, to hit the brakes.
I scare myself. No….my thoughts do. They wander into rooms, corridors and long halls looking for things to scare me, to taunt me about who I was, b/4 this agonizing,circling dance in my head even begins. I’m not me.
That old picture looks like me, but it’s not me anymore. The song says ‘the tigers come at night” – oh how true!
A dragon crawls into my brain each night and forces every bad thought and ugly event in my life to re-birth and then it proceeds to eat me alive, till I self medicate and crawl under my blanket and wait for sleep to take me out of this state…but in a good way. I’m not over thinking when I’m sleeping. I’m frightened tonight. Who can I confess to that ”gets it”??
You.
All good should come your way. You are my light and bipolar whisperer. Thank you for your kindness and help.
I am indebted to you as long as I’m suffering,and then some.
I come here to listen to your personal struggles and to sit by you. Maybe you’re having a bad night too.
I truly hope not. Thank you for having me. The cookies were wonderful.
xxxxxxxxx
Does anyone know if there s a link to autoimmune disorders and bipolar? I have had back pain for 30 years and recently got on a med for RA that has not only helped my pain and arthritis, (which was so bad I could barely walk), but I can think more clearly too. I blamed the fog on bipolar meds but I am wondering if it is just all linked. I spent years just trying to keep it all from getting worse until I got a great PCP who would not let me live that way. She recommended a hysterectomy which I had, and started looking for an immunosuppressant. My life changed so much I can’t believe that 2 years ago I called a suicide hotline. I haven’t had a suicidal thought since the hysterectomy and I suffered EVERY day from suicidal thnking for decades. Not saying it’s for everyone but it certainly helped me.
Nice article
Natasha,
First, I stumbled on to your website and it is always a blessing. I have felt everything you write about and tend to be treatment resistant. However, I am currently on Viibryd and lamictal and some others. I’ve had fewer side effects on this combo than anything I’ve taken, although my appetite is poor (which is not a bad thing! I just eat healthier!
I sympathize with you and all of us out here, sometimes death seems the only permanent solution. I pray that you will feel better, and KEEP Writing!
I’m so grateful for your smart, thoughtful, candid writing. It helps me on a regular basis. I wish I could take your pain away. I hope that someday this puzzle will be solved and nobody will have to feel the way we do.
Thank you for your work, Natasha.
“And as for meds … they work in that I’m not dead…”
Ah yes. Sounds like you’re on the same type as me. They’re just like the old Bissel carpet sweepers that you’d push and pull by hand to brush the carpet – they *almost* work!
Seriously though (that’s only because I’ve run out of dark humour at the moment…) I identify with youre situation. Indeed, my doc actually encourages me not to change the meds because it’s taken a long while to get me to the current state of *almost work* and he doesn’t want me to upset the boat in this sea of relative stability. Great innit! It’s understandable and I concur because the side effects of the stuff I take seem to be less harmful in the long run. But then, I start to think if taking A means the side effects won’t poison the life out of me as soon as if I were taking B is that a good trade-off if? Should I opt for a frequently miserable but longer life or a shorter happier one? Thr problem is that “…they work in that I’m not dead…” is like being hit by water – not enough to drown in but tiny drops that you can’t avoid, day in, day out, year in year out – Chinese Water Torture.
Meh! This BP sucks! (I had a fabulous day the other week, and you can guess what followed a couple of days later
Speaking only for myself, life got better when I finally went on disability at my shrinks strong suggestion. Not working took a lot of the pressure off of me and has made a huge difference. Not that it cured anything; I’m still bipolar. But when it rears it’s ugly head I can now put all my focus on taking care of myself without the added stress of having to make money and live up to he expectations of employer and fellow employees.
There has been definite drawbacks to this but the benefits, for me, out way them.
Arlene, going onto disability saved my life. I was going to die if I didn’t. I was so sick I was psychotic. Not having to work a job outside the home made me able to focus on myself and my two children, both of whom struggle with multiple mental illnesses. Myhusband suffers from anxiety and depression too. The other thing that helped me tremendously was having a total hhysterectomy.I was rapid cycling so hard I was shifting moods every ten minutes. That stopped after the operation. I wish more people understood that for some of us, working is just not an option.
My physical bipolar pain was back trouble. Now my back is pretty much okay. I don’t have pain ALL the time, like I did from the time I was in high school till I started bipolar meds 20 years ago. Yoga also helps — I used to go to the chiropractor almost once a month, sometimes more often, but I told her I’d replaced her with yoga. She said, “Good for you!” Playing my musical instrument is something I do to keep bipolar from getting worse. I TRULY ENJOY that. Natasha, I suspect that your blog and other writings help you feel better?????? I’m up for a med change with a new pdoc today! Wish me success!
Are you sure this isn’t a self-fulfilling prophecy?
Your bipolar disorder sounds very different from mine, as I left the depression and psychosis behind years ago. But when you say “The only thing I am actually capable of is making the pain of bipolar disorder worse.” it reminds me of someone suffering from a condition like agoraphobia. They may say “I don’t know of anything to make me less afraid, but I do know that leaving my house will terrify me, so I don’t do that.” Yet running the risk of making things worse is the only thing which will lead to improvement for them, because to play it safe is absolutely making things worse.
Neurosis is, at base, a lack of faith – faith in life, faith in ourselves… Getting better often requires a leap of faith, which feels a lot like leaping off of a cliff. I don’t know how we find that faith, but I do know that it is the medicine we need.
Thanks, Natasha, for this article. Am I to assume that you aren’t on a med that eliminates your bipolar symptoms? And I’m assuming that you’re referring to emotional and/or mental pain? I guess I’m lucky. My Celexa works very well for me. Thanks again.
Hi D,
I find bipolar pain comes in two varieties: physical and mental. And as for meds, yes, I’m on them and they work in that I’m not dead, but that’s kind of a low bar.
– Natasha Tracy
I agree totally. Physical and mental – definitely. And I can relate to meds working in that I’m not dead. I probably would be if I wasn’t on meds. Sorry if my questions were kind of personal. Please keep doing what you’re doing. It really helps a lot of us – well, me anyway. :)