When you or someone you love is diagnosed with a mental illness like bipolar disorder, likely, you don’t know much about the mental illness outside of what the media and popular culture has told you. Unfortunately, these are not the best sources of information about bipolar disorder, depression, schizophrenia or other mental illnesses.
Mental Health Research
What is critical is that you take it upon yourself to research the mental illness so you can get the facts and not believe the fictions propagated about mental illness. If you’re here at the Bipolar Burble, and reading this, you’ve made an excellent start but I encourage you to continue with these other trusted research options.
Initial Bipolar or Mental Illness Research
Initially, you don’t want to be overloaded with too much information about bipolar disorder or another mental illness. When you’re first diagnosed or when your loved one is, everything may seem overwhelming and 100 pages of information – while useful at some point – probably isn’t what you need at the moment.
I recommend reading about the diagnosis at the Mayo Clinic’s website. The Mayo Clinic, as most people know, is a major, fancy-pants hospital in the United States. The Mayo Clinic site offers reliable, trustworthy, concise, accurate information on illnesses of all types including mental illness.
What I really like about it is that it gives you information chunked up into sections like “symptoms” and “risk factors” so you can read just the part you’re interested in. Even better, Mayo Clinic also provides in-depth information, a question-and-answer section, topic resources and references as well. The Mayo Clinic also provides medication overview information. It’s not your one-stop-shop for mental health information but it’s an excellent place to start.
Secondary Bipolar or Mental Illness Research
Once you’ve got the basics about your diagnosis down, you probably want more in-depth information. Now’s a good time to check out the “in-depth” section on the Mayo Clinic website but there are other places to go too.
I recommend PsychEducation.org for information on bipolar disorder – particularly bipolar II (although a lot of information can be applied to unipolar depression as well). This information is written at a level that most people can understand but it’s written by a doctor, an expert in bipolar disorder, and it covers more in-depth topics about the disorder.
Do not miss this site – there are absolute gems of information in there but you will have to do a bit of work to unearth them.
A site I really like for schizophrenia is the British Columbia Schizophrenia society. Again, this site has information that can be digested by most people but it’s more in-depth and covers specific topics like early psychosis intervention and crisis care.
In-Depth Bipolar or Mental Illness Research
And finally, hopefully everyone gets to the stage when they want serious answers to medical questions. For this level of mental illness research, I recommend Medscape Reference (previously eMedicine, you have to sign-up for an account, but it’s free). This site is written and referenced by doctors and, I believe, is very trustworthy. This is some very in-depth information so you might find yourself skimming – but that’s OK. Just look for the bits that interest you and you’ll learn a lot.
I really like the fact that Medscape Reference, again, chunks up information into sections and subsections like overview -> prognosis or presentation -> complications. What’s more, under the Presentation section the DSM criteria are listed for disorders, which is useful when understanding where your doctor is coming from.
Medscape Reference also does an excellent job at documenting drug details like this.
For the full prescribing information on any drug (as provided by the manufacturer to the FDA – very complete) see Rxlist.com. This is going to give you the most up-to-date information on what we know about drugs, although it’s in medical-eze which makes it tricky for us mere mortals to understand. It’s worth the work, however, if you really want to understand your medications (and you should). (If you find words you don’t know, check them on Dictionary.com or Wikipedia.)
Other Sources of Bipolar and Mental Health Information
Yes, there are a multitude of other sites that offer information about mental illness (including all the articles I write for HealthyPlace.com) but I like the ones above because they are referenced and written by doctors and experts. (In case you were wondering, at HealthyPlace all the work is signed-off by a doctor as well).
But when you consider mental health information, consider the source very carefully, remember that anecdotes are not evidence and some people do have conflicts of interest (which doesn’t rule them out as sources, but should be considered).
Find other mental health resources that I really like and find trustworthy here.
I’m afraid a lot of people on my page are going to skip this really useful article because of the title. “How to research” bipolar sounds like an academic guide to researching rather than a guide to trustworthy sources of basic info. Just sayin’. Thanks to all the commenters who’ve added to the list too. The Burble’s awesome, n’est pas?
Thanks for pointing out a one sided list of pharma and label friendly resources. [moderated]
I am creeping towards my 43rd. b’day and have always felt tremendously different than the one’s around me. I was diagnosed and started medication about two years ago. At first, I felt like the Lithium was my answer to my prayers. Lately, I have not even been able take my meds. I have a major pill swallowing problem and can feel them in my throat all day after I take them. I find myself extremely jealous of people around me that do not handle even the bigger crisis with a huge moody and tear filled episode.
I hate the way that I feel most days and have been trying to research any information from other individuals that suffer from this life affecting disease.
I am thankful for stumbling upon this website. Thank you .. Jennifer Green Everett Washington
Hi Jennifer,
I’m glad you found me; I hope it helps.
Regarding your pill-swallowing problem, I recommend seeking out a compounding pharmacy. They can typically take medication and make it into other forms. Maybe they can make smaller pills for you or something you can put in liquid and drink.
And definitely mention the problem to your doctor as he or she may have other ideas. Some medications are actually made in other formulations (like liquid) that you can get.
I hope your research is helping you come to terms with your situation.
– Natasha Tracy
Thanks for this Natasha. There’s so much unreliable material out there, so it’s great to know just where to head for reliable info.
Cate
Natasha – Thanks for getting those resources vetted and out in the bipolarsphere for others to use. I have used most of those sites (not the schizophrenia ones) and they are indeed helpful. Your post has “distilled” all the wonderful sites out there into the best of the best for people needing a path in their quest for more, quality information. Keep up your awesome work! Thank-you!
Thanks Jeff, I plan to :)
– Natasha Tracy
One of the best sites I’ve found for more detailed information about Bipolar is McMan’s Depression & Bipolar Web:
http://www.mcmanweb.com/
Lots of info about co-occuring conditions, types of Bipolar, etc.
Three resources I found really useful when I was researching were the articles and information sheets at the black dog institute website (part of the Uni of New South Wales here in Australia).
http://www.blackdoginstitute.org.au/
The director of the institute, Gordon Parker, has also written an awesome book that’s well worth a read. (it’s written with the treating doctor as the audience, so is a bit scientific-y. If that’s not your background, it may well be over your head). Bipolar 2 disorder: Modelling, measuring, managing. (edited by Gordon Parker).
The other which is great and I got for my partner who dosen’t have a scientific background was ‘Why Am I Still Depressed? Recognizing and Managing the Ups and Downs of Bipolar II and Soft Bipolar Disorder’ (Jim Phelps)
All worth a read.
andy
Hi @ar610,
Thanks for pointing out those resources. Naturally, I don’t know about every resource :) so they may help others.
– Natasha Tracy