I have experienced so many bipolar medication side effects that I can’t remember them all. They have ranged from the common that many people experience like weight gain and dry mouth to the more unusual such as falling out hair and me falling over. When I started taking bipolar medication and started experiencing side effects, I tended to just grit my teeth, bear it and suffer. And I see this all the time in people. People constantly contact me and ask what to do about bipolar medication side effects because they are currently suffering.
I don’t believe in needless suffering. I believe there are things you can do about many, if not most, of the bipolar medication side effects.
Why Do People Suffer with Bipolar Medication Side Effects? – The Two Main Reasons
There are two main reasons people continue to suffer with bipolar medication side effects. (Well, three, but I’ll get to number three in a bit.)
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Patients don’t honestly and frankly tell their doctors about the side effects.
I cannot tell you how many times I have spoken to people with bipolar disorder who are suffering from nasty bipolar medication side effects and they haven’t even adequately explained this to their doctors. I do understand this. It can be hard and even scary to talk to a person in a position of authority and tell the doctor what he or she doesn’t want to hear. After all, the doctor just wants you to say, “Great! I’m all better!” Most of us don’t get to say that, certainly not all the time. Really and truly, most patients are not completely honest with their doctors.
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Doctors don’t listen when patients talk about their bipolar medication side effects.
On the other hand, some patients do express their concerns over medication side effects but their doctors just aren’t listening. This, too, is shockingly, and unfortunately, common. (This is especially prevalent if you’re bipolar and high-functioning.)
Both of these are very serious reasons. But, luckily, both of these can be fixed.
How to Address Bipolar Medication Side Effects with your Doctor
Of course, the first situation is fixed by being blunt and honest with your doctor. I’ve found that doctors don’t hear you unless you yell (metaphorically speaking).
Don’t say things like:
- “I feel kind of foggy.”
- “I feel okay, I guess.”
Do say things like:
- “I can’t understand words when I’m reading. This is impacting my ability to study for school.”
- “I feel very sick on this medication. I feel dizzy, my mouth feels like it’s stuffed with cotton and no matter how much sleep I get, I never feel rested. I’ve been late to work three times this week because of it.”
The things you do need to say have two important parts: you need to say how you are feeling – in explicit language – and you need to say how that is impacting you. Because if you say, “I feel dizzy,” the doctor might just make a note in your file and that’s it. If, on the other hand, you say, “I’m so dizzy I have fallen over trying to get up from the couch three times,” that may require a more active response.
And you need to be specific as to whether you can withstand the side effect and see if it reduces over time (because many do) or whether you simply cannot tolerate it and need a change – now.
If your doctor is not listening to what you’re saying, then be more explicit. Say something like, “I’m so groggy in the mornings I can’t pack my kids’ lunches. This is not acceptable. I need to be more functional than this in the morning. I’m the only one who can do it. My kids need me.”
And if your doctor doesn’t listen to that? Well then he doesn’t sound like he’s worth your time. Remember, a doctor works for you – you pay him/her – and if he or she aren’t getting the job done then you need to find one that does.
What Might a Doctor Do about Bipolar Medication Side Effects?
Because here’s the thing, I cannot tell you what to do about any specific side effect. Yes, in some cases I could make some suggestions, but in all cases, you should be talking to your doctor about them and making a plan to deal with them.
A doctor might respond to a bipolar medication side effect by:
- Reducing the dose of one or more medications
- Increasing the dose of the medication more slowly over time (if just starting a medication)
- Stopping a medication altogether
- Suggesting lifestyle changes that can address the issue (such as in the case of insomnia)
- Adding another medication to deal with the side effect
Your personal situation is what will dictate what the doctor does. And that is why I cannot give you specific advice. Only your doctor knows your history and only you and he/she can make the best decision for you together.
The Third Reason People Suffer from Bipolar Medication Side Effects
The third reason people continue to suffer with bipolar medication side effects is this: it’s because they think they have to. It’s because they don’t have another viable option for treatment. It’s because the medication’s benefits outweigh its side effects. I am in this position and so are many others.
This doesn’t necessarily mean that there truly is nothing to do about bipolar medication side effects, though. For people like me, people who have been in bipolar treatment for many years, we may think that suffering is just part of the gig. And, to some extent, it may be for some. And I know that I’ve been really lax in relaying all the bothersome side effects, and even new bipolar symptoms, to my doctor because I’m just used to the suffering. It’s just part of what I live with.
The thing is, I’m not always right about that. I learned, recently, that there actually was another option for me in dealing with a new side effect that had emerged. And I never would have discovered this if I hadn’t have been very straightforward with my doctor and told him how awful the side effect was.
And even if your doctor has nothing to offer, you may be able to get a second opinion for help. Or even try an alternative medicine treatment (don’t do this without your doctor’s okay). If you do want to look at alternative medicine, a good place to start is at the University of Maryland Medical Center’s Complementary and Alternative Medicine Guide. This guide provides lots of information on these options along with a review of any available evidence.
The Low-Down on Bipolar Medication Side Effects
So, while I admit that some bipolar medication side effects are things we have to live with, I think most of them we do not. If you are experiencing side effects, you need to take the problem into your own hands and insist that it be addressed, if at all possible. You won’t always be happy with the results, but sometimes you will. Remember: your quality of life is very important, you deserve to have a great one and it should always be maximized.
I still struggle with this a lot. It’s always something, I’m been on all the meds I know of lately I had worse mania. Nope- didn’t help me. They did put Seroquel, and I hated that. I was in a mixed mood and i needed it or I was going to go way bonkers. And even though I told him no meds that would make me gain weight. But I was so crazy at that time, he did add seroquel. I hated it but you do what you need to do to keep people, like my family.
Pdoc has taken it away now, because he knows me too well. So we are monitoring that and we’ll see. Right now,
Right now I feel like i feel pretty manic, my hands are totally shaking. And some in my legs! After taking the seroquel, he thinks it’s my new pills causing the side. Really? I need a break from BP. I’m getting so frustrated,
I have spent over a decade trying to a. find a doctor that doesn’t blow off my side effects b. find medication I can live with. It can be done. It’s a hard road. You have to be insistent that the doctor listen to you and note your side effects. You have to refuse to continue taking medications that are just not acceptable. You have to be willing to set aside the time to try a new med. I went through 7 doctors until I found an acceptable one. I went through just about every med available. I finally settled on taking lower doses of medication, accepting some bipolar symptoms in return. I can handle being irritable in the morning. I cannot handle constant swings of anger, nor can I handle a drug that makes 2/3 of my hair fall out. (As examples.) Therefore I am on a low dose of a mild mood stabilizer, and a middle-dose of an antipsychotic. I cannot take antidepressants, they make me too irritable. So I plow through the depressions, leaning on whoever I need to lean on to get through them. I think many times people want the perfect solution, and there is none. You have to accept SOME discomfort, and unfortunately, doctors cannot predict how much med a person will need, nor the side effects that they will have. One thing is for sure, you can NOT be passive in your treatment.
The that I take have caused me to gain an excessive amount of weight. I am sickened by it. I used to be active ,but , somewhere in gaining all the weight, I lost my appetite to be active.
My GP says that there are really no meds that are available to take that would help with weight loss. My psychiatrist
says the same. I can not live without the medication. I will revert back to street drugs and lose weight that way.
Are they telling me the truth? Is there no other way?
I know to exercise and eat healthily and I try. It seems as if that is hard to do. I’ve been working on this for 3 years now , I am not ready to give up. I needed to share.
Linda B.
Like you, I cannot live without medications.
Everyone is different with different side effects, however, there are meds that do not cause a person to gain weight , providing they’re exercising and eating sensibly.
My question to you is : Is your psychiatrist telling you that the med you’re on , causing weight gain, will cause weight gain no matter what ? Does the med slow down your metabolism or some other bodily function where being able to loose unwanted weight really is impossible ?
The combinations of meds that I take do not cause weight gain. They do help me to maintain a healthy weight, because they’re dialing down my high anxiety levels where I was too nervous to eat. Skinny and sick is not good, as you already know. In fact, I’m glad you’re so aware of the pitfalls if you go off the meds making you gain too much weight. If I was in your situation I would be doing drug trials to see if there’s a substitute for the med causing weight gain. There are so many new medications brought to market every year. Frankly, I’m concerned to hear about a psychiatrist who says there’s nothing to help you to loose the weight without addressing the fact that being overweight is so depressing it takes your appetite for exercise away. Maybe the depression meds could be better, more effective, giving you back the desire to exercise and watch what you eat ? These are just my thoughts, because I don’t have professional ability; just an ‘ on the regular ‘ woman who has bipolar.
After starting a new med, I suddenly wanted to self-injure after some years of not doing it. I wasn’t depressed or suicidal, it just seemed like a good idea all of a sudden. I finally called my doc after about four days and she had me discontinue the medication immediately – turned out it was known to cause this problem in some people, especially teens, but (aha!) I had never told her that self-injury used to be a problem for me. So not only do you have to be honest with your doctor about your side effects, you need to be honest with your doctor about all the stuff you decided not to ever tell anybody.
Thank-You for writing about upsetting side effects, even though the medicine is a good combination for many of us. The benefits definitely outweigh the sides in most cases. Weight gain seems to be the most bothersome side effect for women to accept. I don’t know if men are as bothered as women ( ? )
My side is extreme dry mouth that is chronic to the point where I have to have sugarless gum in my mouth all the time. I literally have no saliva without the gum. At night I wear a retainer flooded with special mouthwash and mouth moisture gel all over my tongue. The only concern is the fake sugar.
Thanks for your excellent article, Natasha. I have often found that clients who have side-effects from medication have been anxious about telling their doctors about it, or in some cases it hadn’t even occurred to them! As a therapisst, it is important to maintain good communication with GPs and other healthcare professionals, but encouraging a client to communicate with other members of their mental health team can be hard work. I view part of my job in that situation as being about reminding clients that change is possible, and that their GP or psychiatrist can definitely help!
Thank you Natasha for all you do. This blog in particular. You have helped me so much in the 3 years I’ve read you. I wish you well in this fight we fight. Side effects and all.
I have lived longer than I anticipated. Therefore I have put up with BP bs to the point where I have become my own best clinician. Education, experience, and favorable results from personal theory have kept me relatively acceptable on the outside. The inside can still be an unforgivable mess, but I channel those emotions into creative pursuits and abilities. Do I feel better, not always. There is no silver bullet, and I refuse to use the other kind simply because it is against my religion – something to believe in has been a life saver. If you don’t take a proactive self disciplined approach to your life, the consequences of well meaning, and even qualified care givers will be with you all the days of your life. Blogs like this one help, but you have to do the work.
Charles Mistretta, I can identify with practically everything you wrote. The only part where we’re different is I still see my therapist once a week. I’m on medicare with a secondary insurance where my co-pay is zero. If I had to for therapy I probably wouldn’t be going. With the money not spent on therapy, I’d derive more emotional benefit from a 90 minute massage . Unfortunately medicare doesn’t pay for massage, which might change in the future ( ? )
Natasha,
Thank you for the very insightful article on side effects. I’ve been struggling with side effects, adverse effects, or no effects for over 6 years now. Luckily, I do have a psychiatrist that DOES listen and will alter my meds accordingly (adjust, add, or remove). We are both frustrated with my resistance to some and reactions to others but still keep plugging along trying to find something that works. I keep a log book, which I bring to my appointments, that I write my symptoms and potential side effects, as I’m forgetful.
Hi Laura,
That is a great comment, also. Logbooks are a great idea.
– Natasha Tracy
Loging is great but w depression an you dnt have what it takesto even$÷%€!(£₩.I have great disapline self control.Everyones tolareance to pain is differnt body or mind BAD refractory leaves one with differnt levels control.They would switch my med every time if i was big whiner.after 40 years do you want what you have or try door #3.I would take adjustments but nothing differnt for 17 years I finnally was offered cymbalta by primary care told resdent psyc he was affraid it would push me out top next time he says we can try it back to primary care told him story he asked an i said would prefer he prescribe.Some trade off no awful seasonal bouts or major downs.Praise God no more unbearable downs Often the writer gains the most from this for we look closely of ourself to write and reevaluate Thank xxx